Parenting a Child with Disability
Mon, April 19, 2021

Parenting a Child with Disability

It is very heartbreaking to see your child sick or in pain. Matters could be worse if your child has a disability or a special need / Photo by: Jaren Jai Wicklund via Shutterstock

 

It is very heartbreaking to see your child sick or in pain. Matters could be worse if your child has a disability or a special need. According to Feros Care, a website that provides information on reaching out to older Australian citizens or people with disabilities, some parents will feel that it will always be a challenge for them to live normal lives when their child has a certain disability. It may be true at some point, but it does not have to be that way all the time. Parents will feel a lot of painful emotions, and most of them will begin to question why their child is under such a dire circumstance.

It may be true that some parents will feel guilt and resentment over their situation, but there is hope for things to get better. Although certain disabilities cannot be healed completely but just be managed, a parent needs to understand that it is not the end of the world, and they do not need to face such challenges on their own.

 

Challenges Ahead

In an article on the main website of the Boston University academic institution, pointed out were some of the challenges parents will need to face and prepare and these include the following:

- Knowing more about the disability of the child

- Having access to information on treatments and other alternatives

- Being able to cope with the emotional and physical demands of having to take care of someone with a disability

- Setting appointments and counseling with medical practitioners, school staff, and other people with direct contact with the child

- Providing comforts when outside of the home

- Financial coverage for treatments and the like

These things could be stressful for many parents out there. Most will be so stressed that their stress levels could be compared to those of soldiers in battle. Also, when it comes to finances, one has to admit that taking care of a child with a disability is not a walk in the park. Some treatments can cost hundreds of dollars, and you’ll also have to pay for the medical professionals and other people interacting with your child. Some might think that this could be some sort of loss of income for the household, but this type of mindset should not be the case all the time.

Sometimes, emotions can take over, especially being fearful or too worried about the child’s condition. These could be questions about his future, his pain condition, and if as a parent, you are doing and exhausting everything you can for the benefit of your child. There could also be moments wherein you’ll feel jealous of other kids without disabilities. Schedules can also change since your priority is your child, and you may even feel depressed and frustrated for not being able to fulfill his dreams as most children do.

Sometimes, emotions can take over, especially being fearful or too worried about the child’s condition / Photo by: Goldsithney via Shutterstock

 

Support System

It’s a fact that it could be exhausting to take care of a child with a disability, but it shouldn’t be that way all the time. You’ll also have to set aside some time for yourself to enjoy and see the silver lining in whatever circumstance you are in now. There will always be support from different people, and it could mainly come from other parents who also have children with disabilities. Some community centers have a group of individuals that help support and care for children with disabilities. This could somehow lift a bit of what we can consider being a heavy burden, but we know that there isn’t anything we would not do for the sake of our children.

 

What Should you Know?

There are certain things that you should know when it comes to having a child with disabilities. As listed on Abilities, a website that offers advice to disabled members of the community, several things should be made aware to parents of disabled children:

You are not alone – all you need to do is find these people. They’ll be the ones to help you and give you advice about some things you can do.

You also need care – do things that can make you feel special. Every human being needs love, support, care, and some fun. This includes you.

Nobody is perfect – people make mistakes—that is a fact. If ever we did something wrong, we should be able to make amends as quickly as possible.

You are an everyday hero – being able to juggle work and home life is quite challenging. You hurtle from one schedule to another just to be on time and not miss out on those therapies that your child needs. This definitely makes you a hero.

Therapy is a good time – therapy sessions should be a good time for you and your child. Your child is learning, and you are learning at the same time as well. Take it all in.

Remember, having a disabled child doesn’t make you a loser. It’s how you handle the situation and take care of them that will ultimately define you as a person.

You are not alone – all you need to do is find these people. They’ll be the ones to help you and give you advice about some things you can do / Photo by: Jaren Jai Wicklund via Shutterstock